Just a quick entry. . . as of today, I have finished second grade and you can now call me a THIRD GRADER. Wow! I don't do the same things in "school" that other kids do, but I keep on learning and learning. My teacher is very nice, and she sings the alphabet song to me all the time. We sing other songs, too. She helps me color, and I learn about animals and all kinds of things. Ms. Paula will be my summer school teacher, too, so we'll just keep moving forward. I have my very own Individual Education Plan, so it's "all about me," and that's the way I like it! (That's how princesses are, you know.) Anyway, I just wanted to let you know my exciting news. If you haven't read my other updates, go ahead and scroll down for the latest news. I've been so busy lately!
Gotta run! Love to you all!
Wednesday, May 30, 2007
Sunday, May 27, 2007
May 27, 2007
The past week has been kind of crazy around my house. Grandma was here a lot taking care of me (and Ian and Thor). Dad was in New Jersey for work from Monday until Thursday. He was able to get an early flight on Thursday, though, so he came home and rocked me in the rocking chair and then went to Ian's baseball game (which they won!). It was a big surprise because he's usually not home until late on Thursday nights. Mom was in Memphis all week for Banking School, and she got home late Friday night. I was already asleep, but we got to snuggle Saturday morning and then again in the afternoon, and then again before I went to bed. (We'll snuggle again today after she finishes her ironing.)
Dad always gives me "catch-up" kisses when he gets back in town, so it takes a while to go through Monday, Tuesday, Wednesday and Thurday kisses. Mom said she was giving me "ketchup, mustard and barbecue sauce" kisses for being gone Sunday through Friday. (Dad didn't think her joke was very funny.)
I went to a "School's Out Carnival" at Ian's school yesterday afternoon for a little while. Mom helped me throw the bean bag, the washers and the little basketball. I was pretty good! I won four stickers that Mom stuck to my arms, and I had my face painted with a bright red lipstick mark (with sparkly red paint in the middle), so it looked like it does when Grandma gives me a big kiss!
Mom and Dad were going to take me to see my first-ever movie at the movie theatre this weekend. I was going to see Shrek III, but it was sold out yesterday, and they decided not to take me to a really crowded theatre, so we're going to wait a while. They don't want my first movie experience to be cram-packed with a bunch of loud kids who might get aggrevated if I have to use my suction machine during the movie. I wish I could taste the popcorn! That's not something that can go through my feeding tube!
Grandma and Grandpa are coming over for dinner tonight. Mom said she's making something very healthy since everybody around here seems to be "watching what they eat." Mom said she gained six pounds at Banking School because they have such great food there! Dad LOST seven pounds last week because he was being so healthy. I guess Mom found what he lost! I'm going to see a dietician in June when I see the GI doctor about my feeding tube button. I wonder if I'll have to gain weight or lose weight or if I'm "just right."
Ian is out of school now, so he's loving life right now. No homework. No tests. No memory to learn. But he only has a week off, and then he goes to the Scholars Academy at MAC. He'll be in "school" for a whole month, but it's supposed to be really, really fun for him. I hope he has a lot of fun!
I hope everyone has a wonderful week. I'll catch up with you again very soon!
Dad always gives me "catch-up" kisses when he gets back in town, so it takes a while to go through Monday, Tuesday, Wednesday and Thurday kisses. Mom said she was giving me "ketchup, mustard and barbecue sauce" kisses for being gone Sunday through Friday. (Dad didn't think her joke was very funny.)
I went to a "School's Out Carnival" at Ian's school yesterday afternoon for a little while. Mom helped me throw the bean bag, the washers and the little basketball. I was pretty good! I won four stickers that Mom stuck to my arms, and I had my face painted with a bright red lipstick mark (with sparkly red paint in the middle), so it looked like it does when Grandma gives me a big kiss!
Mom and Dad were going to take me to see my first-ever movie at the movie theatre this weekend. I was going to see Shrek III, but it was sold out yesterday, and they decided not to take me to a really crowded theatre, so we're going to wait a while. They don't want my first movie experience to be cram-packed with a bunch of loud kids who might get aggrevated if I have to use my suction machine during the movie. I wish I could taste the popcorn! That's not something that can go through my feeding tube!
Grandma and Grandpa are coming over for dinner tonight. Mom said she's making something very healthy since everybody around here seems to be "watching what they eat." Mom said she gained six pounds at Banking School because they have such great food there! Dad LOST seven pounds last week because he was being so healthy. I guess Mom found what he lost! I'm going to see a dietician in June when I see the GI doctor about my feeding tube button. I wonder if I'll have to gain weight or lose weight or if I'm "just right."
Ian is out of school now, so he's loving life right now. No homework. No tests. No memory to learn. But he only has a week off, and then he goes to the Scholars Academy at MAC. He'll be in "school" for a whole month, but it's supposed to be really, really fun for him. I hope he has a lot of fun!
I hope everyone has a wonderful week. I'll catch up with you again very soon!
Saturday, May 19, 2007
May 19, 2007
Today was another beautiful day! It was the first day of baseball season for my brother's team. He's on the Marlins this year in the Desloge City league. Two of his classmates are also on the team. Since it was such a pretty day, I got to go to the game with Mom, Dad, Ian (and his friend Corey), Grandma and Grandpa. Ian played second base and first base. He got two singles and a triple, and he made an awesome play at first base. His team won 12-0. It was very exciting. Mom and Grandma did a good job of keeping my very white arms out of the bright sun, (but Mom also used good sunscreen today), so I didn't get burned. However, I got very, very sleepy. I'm not used to being outside for that long.
I just finished sitting on mom's lap in the rocking chair for an hour. I was practically sound asleep when the nurse arrived. I'm very wiped out today.
Mom leaves at 6:30 in the morning for Memphis. This is her second year of banking school, and she'll be gone until very late Friday night. Her classes start at 1 o'clock Sunday afternoon, then she has class every day from 8 a.m. until 8:30 p.m. She's a little bit stressed about being gone since Dad will be in New Jersey again. But Grandma and Grandpa will be around to make sure everything is running smoothly, so she really shouldn't worry. (Of course, she left a "checklist" for every hour of every day while she's gone so everybody knows where he should be and what he should be doing.) Mom's trying to get into "sponge" mode so she can "absorb" all the new information this year. She said it's all new to her this year because most of it is about "lending products." I'm not sure what that means, but I know she's in marketing, not lending. So I guess she'll learn a few things!
Everybody, please say lots of prayers that Ian, Grandma, Grandpa, all the nurses and I all stay very healthy this week. That will make things go much, much smoother!
Love to you all. I'll catch up with you next week.
I just finished sitting on mom's lap in the rocking chair for an hour. I was practically sound asleep when the nurse arrived. I'm very wiped out today.
Mom leaves at 6:30 in the morning for Memphis. This is her second year of banking school, and she'll be gone until very late Friday night. Her classes start at 1 o'clock Sunday afternoon, then she has class every day from 8 a.m. until 8:30 p.m. She's a little bit stressed about being gone since Dad will be in New Jersey again. But Grandma and Grandpa will be around to make sure everything is running smoothly, so she really shouldn't worry. (Of course, she left a "checklist" for every hour of every day while she's gone so everybody knows where he should be and what he should be doing.) Mom's trying to get into "sponge" mode so she can "absorb" all the new information this year. She said it's all new to her this year because most of it is about "lending products." I'm not sure what that means, but I know she's in marketing, not lending. So I guess she'll learn a few things!
Everybody, please say lots of prayers that Ian, Grandma, Grandpa, all the nurses and I all stay very healthy this week. That will make things go much, much smoother!
Love to you all. I'll catch up with you next week.
Sunday, May 13, 2007
May 13, 2007 (Part Two)
I already wrote something this morning, so you might want to read that one first. But I wanted to tell you what my adventure ended up being today, and I just couldn't wait. It was FUN! It was a beautiful, perfect day today. Blue sky. Not a cloud floating by. Perfect temperature. No humidity. What more could we ask for?
So Mom and Dad packed up my stuff, and Ian and I went to St. Joe State Park with them. We went to the bike trail and walked for about 40 minutes through the beautiful trees. (It's a paved path, so my wheelchair rolled right along very easily.) Ian pushed me for the first half. Dad pushed me the second half. Mom toted my pink backpack the whole way. (This is my "GO BAG." Basically it goes where I go, with all my emergency medical needs.)
After our walk in the great outdoors, we went to the Family Fun Center and went BOWLING! When it was my turn, Ian would hold the ball out to me and let me touch it, then he would throw it down the lane for me. While Ian was walking up to the line to throw the ball, Mom would push me along next to him, so it was like I was really doing it! We used the bumpers for my turn, and I ended up with a score of 91! Pretty good, huh? Actually, Mom ended up kicking our behinds. She got a 144, which she says is one of her very best scores ever, so she was happy. She even beat Dad somehow. Since it was Mother's Day, we thought it turned out just the way it was supposed to.
When we got home, Mom got to hold me in the rocking chair for an hour and a half while Dad cooked one of his world-famous meals. Grandma and Grandpa came over to eat. Mom ate way too much, but she said that was okay. She'd get back on track tomorrow. Then Dad and Ian cleaned up the whole kitchen.
Uncle Bradley just called, so I got to talk to him. He's so funny! He makes me smile. I wish my uncles and aunts lived closer to me, but it's always fun to talk to them on the phone.
Well, I just wanted to let you know what I ended up doing today. Now you can read the first part of today's entry. I'll write more next week sometime. Everyone, have a great week!
So Mom and Dad packed up my stuff, and Ian and I went to St. Joe State Park with them. We went to the bike trail and walked for about 40 minutes through the beautiful trees. (It's a paved path, so my wheelchair rolled right along very easily.) Ian pushed me for the first half. Dad pushed me the second half. Mom toted my pink backpack the whole way. (This is my "GO BAG." Basically it goes where I go, with all my emergency medical needs.)
After our walk in the great outdoors, we went to the Family Fun Center and went BOWLING! When it was my turn, Ian would hold the ball out to me and let me touch it, then he would throw it down the lane for me. While Ian was walking up to the line to throw the ball, Mom would push me along next to him, so it was like I was really doing it! We used the bumpers for my turn, and I ended up with a score of 91! Pretty good, huh? Actually, Mom ended up kicking our behinds. She got a 144, which she says is one of her very best scores ever, so she was happy. She even beat Dad somehow. Since it was Mother's Day, we thought it turned out just the way it was supposed to.
When we got home, Mom got to hold me in the rocking chair for an hour and a half while Dad cooked one of his world-famous meals. Grandma and Grandpa came over to eat. Mom ate way too much, but she said that was okay. She'd get back on track tomorrow. Then Dad and Ian cleaned up the whole kitchen.
Uncle Bradley just called, so I got to talk to him. He's so funny! He makes me smile. I wish my uncles and aunts lived closer to me, but it's always fun to talk to them on the phone.
Well, I just wanted to let you know what I ended up doing today. Now you can read the first part of today's entry. I'll write more next week sometime. Everyone, have a great week!
May 13, 2007
Today is Mother's Day, and I'd like to wish my mom a very happy day! She is, of course, the best mom ever!
Last night, Dad kept me in the family room with him (and Ian) all night so that Mom could have a full night's sleep without any interruptions - in her own bed in her own room! She didn't have to go to the "cave" (the bedroom in the basement). That's what she does when the nurse is here with me.
It was fun having a special sleep-over with Dad and Ian. Dad made a comfortable place for me to sleep at just the right angle, and he pretty much stayed up all night to make sure I was okay. See, he is a VERY heavy sleeper. He doesn't hear anything when he's asleep, so he was afraid that if he fell asleep and I coughed, he wouldn't know about it until my pulse-ox machine started beeping (which means that I'm not getting enough oxygen). He didn't want me to fill up my Thermovent (the little filter that hooks on to my trach tube) with goo, and he wouldn't know about it for a long time. Isn't he a nice dad? He really sacrificed for Mom. He really loves her a lot. It makes me feel so good knowing that Mom and Dad love each other so much, because I know how stressful life can be sometimes. I see it all the time in the faces of people around me.
I've had a pretty good week - I've been able to go outside a lot. It didn't rain as much as the weather man said it would. This afternoon, we are going to do something as a family. I'm not sure what it will be, but it's such a pretty day that I think it HAS to be outside! YEAH!!! My favorite. (Mom says she has to pay the bills first. I guess that's going to take a long time?)
This evening, Dad is going to cook his famous pork tenderloin for Mom and Grandma. Sometimes I really wish I could eat something by mouth so that I could taste what Dad cooks because Mom says he is definitely the best cook in the family, (although Mom has her own signature dishes, too).
I have some exercises to do now - have to stay fit and trim! Actually, I just have to stay stretched out and relaxed because my muscles get so tensed up and stiff, I have to exercise several times a day to stay flexible. It's kind of fun because I just have to lie down and someone does all the work for me - they move my arms and legs, wrists and ankles, shoulders and neck... Mom says she wishes that she could exercise the same way. It would be much easier than walking on the treadmill and doing crunches!
Happy Mother's Day to all you mommies out there! Your kids are so lucky to have you in their lives! Remember to take care of yourselves because you always have to be at 100% (so you can take care of the rest of us)!
Love you!
Last night, Dad kept me in the family room with him (and Ian) all night so that Mom could have a full night's sleep without any interruptions - in her own bed in her own room! She didn't have to go to the "cave" (the bedroom in the basement). That's what she does when the nurse is here with me.
It was fun having a special sleep-over with Dad and Ian. Dad made a comfortable place for me to sleep at just the right angle, and he pretty much stayed up all night to make sure I was okay. See, he is a VERY heavy sleeper. He doesn't hear anything when he's asleep, so he was afraid that if he fell asleep and I coughed, he wouldn't know about it until my pulse-ox machine started beeping (which means that I'm not getting enough oxygen). He didn't want me to fill up my Thermovent (the little filter that hooks on to my trach tube) with goo, and he wouldn't know about it for a long time. Isn't he a nice dad? He really sacrificed for Mom. He really loves her a lot. It makes me feel so good knowing that Mom and Dad love each other so much, because I know how stressful life can be sometimes. I see it all the time in the faces of people around me.
I've had a pretty good week - I've been able to go outside a lot. It didn't rain as much as the weather man said it would. This afternoon, we are going to do something as a family. I'm not sure what it will be, but it's such a pretty day that I think it HAS to be outside! YEAH!!! My favorite. (Mom says she has to pay the bills first. I guess that's going to take a long time?)
This evening, Dad is going to cook his famous pork tenderloin for Mom and Grandma. Sometimes I really wish I could eat something by mouth so that I could taste what Dad cooks because Mom says he is definitely the best cook in the family, (although Mom has her own signature dishes, too).
I have some exercises to do now - have to stay fit and trim! Actually, I just have to stay stretched out and relaxed because my muscles get so tensed up and stiff, I have to exercise several times a day to stay flexible. It's kind of fun because I just have to lie down and someone does all the work for me - they move my arms and legs, wrists and ankles, shoulders and neck... Mom says she wishes that she could exercise the same way. It would be much easier than walking on the treadmill and doing crunches!
Happy Mother's Day to all you mommies out there! Your kids are so lucky to have you in their lives! Remember to take care of yourselves because you always have to be at 100% (so you can take care of the rest of us)!
Love you!
Sunday, May 6, 2007
May 6, 2007
It's been a crazy week around my house. Last night was the big St. Paul Lutheran School auction and dinner. (That's where Ian goes to school.) Mom has been working on this for months now, so she and Dad went last night. They bought a lot of stuff. Mom said she just couldn't see some of the things going for such bargain prices in the silent auction, so she likes to "bid things up." As usual, she ended up "winning the bid" on a lot more than she anticipated. Oh, well. It's "for the kids," she says.
Dad had to stay in New Jersey an extra day this week for a training session, so he didn't get home until Friday. Luckily I was still awake when he walked in, so we got to snuggle, snuggle, snuggle. I love to sit on Dad's lap and just lean back and relax. He rocks me in the chair, and we both get kind of sleepy. Everybody says that when they rock me in the chair, I suck all their energy out. Maybe that's why I keep getting a tiny bit better everyday. Maybe I'm using everyone else's energy!!!
Since I've gotten taller and bigger, Dad is almost the only person who can hold me on his lap with enough room. When Grandma Ross holds me, my feet almost touch the floor, so she can't rock too hard. (She's kind of short, you know.)
Yesterday I got to go outside for a while. It was really hot and humid, but I got to swing for A little while. I really love my swing!
It's Sunday morning, and the nurse is here for a few hours. She's going to do a lot of stretches with me today. I know it's going to be a very busy day, so we're going to get all the "hard work" out of the way. I hope everyone has a wonderful week! Leave me a message and tell me what you are going to do this week. I like to hear about things that are going on out there...
Love to you all!
Dad had to stay in New Jersey an extra day this week for a training session, so he didn't get home until Friday. Luckily I was still awake when he walked in, so we got to snuggle, snuggle, snuggle. I love to sit on Dad's lap and just lean back and relax. He rocks me in the chair, and we both get kind of sleepy. Everybody says that when they rock me in the chair, I suck all their energy out. Maybe that's why I keep getting a tiny bit better everyday. Maybe I'm using everyone else's energy!!!
Since I've gotten taller and bigger, Dad is almost the only person who can hold me on his lap with enough room. When Grandma Ross holds me, my feet almost touch the floor, so she can't rock too hard. (She's kind of short, you know.)
Yesterday I got to go outside for a while. It was really hot and humid, but I got to swing for A little while. I really love my swing!
It's Sunday morning, and the nurse is here for a few hours. She's going to do a lot of stretches with me today. I know it's going to be a very busy day, so we're going to get all the "hard work" out of the way. I hope everyone has a wonderful week! Leave me a message and tell me what you are going to do this week. I like to hear about things that are going on out there...
Love to you all!
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